End Stage Dementia and Tube feedings
May 13, 2009 at 9:30 am | Posted in Megan Milchman, GCM | Leave a CommentTags: Alzheimer's Association, Alzheimer's Disease, End-Stage, Tube Feeding
At this stage many people are confused as to what to do for their loved one, especially if there is no Living Will/Advanced Directive in place. End Stage Dementia can be difficult for the patient, family/caregiver, and anyone else who is involved in the care of this person.
By the End-Stage the person is completely dependent on others. They can no longer walk, talk, and eating may be difficult. What do you do at this point? Ask questions and become educated. Also go with what you feel, don’t allow anybody to choose for you, especially if it not something that you would do.
Get the facts. A nursing home will still allow your loved one to stay there, even if you decide not to go ahead and place a tube.
Get all your options and weigh them.
Facts: Peg tubes may not prevent lung infections. Peg Tubes are not required by law, it is YOUR choice. Tube feedings can be stopped at anytime. You are NOT starving your loved one. At end-stage Dementia, patients may not feel hungry or thirsty anymore and sometimes, feeding and hydrating them can cause more discomfort.
I am not telling you I am for or against tube feedings. I am also not telling you what you should do. I am giving you facts that you can use to help you along in your decision making process.
Good Luck!
Tube feeding myths and facts, Altenheim Nursing Home
Early Stage Alzheimer’s Disease
May 12, 2009 at 8:37 am | Posted in Sophia Heftler, GCM | Leave a CommentTags: Alzheimer's Association, Alzheimer's Disease, Cognitive Screening, Early Onset
On Friday the staff of Distinctive Care Geriatric Care Management attended the NJ Alzheimer’s Association annual confernce New Directions in Research and Care. The conference was amazing and there were internationally renowned presenters speaking about the new developments in the field of Alzheimer’s Disease research.
I had the privilege of attending a panel discussion featuring two couples in which one of the partners had early stage dementia. It was fascinating to hear them describe what prompted them to be evaluated for the disease and what life has been like since receiving the diagnosis.
One couple was older and they did not live together. The woman and the gentleman’s daughter had noticed changes in his memory, mood and behaviors. They in turn had informed his son who lived out of town and it was during a visit to his son that he was told about the changes they all had observed. Upon his return home he made an appointment to have a complete evaluation conducted and received the diagnosis of Alzheimer’s Disease. He is currently living alone and his girlfriend worries about him being alone in the house. He is still driving but knows that in the future he will have to give up the keys to his car. His family and friends have been very supportive and the medication seems to have slowed the progress. His brother also has the disease and they talk about it often. He and his girlfriend attend a support group for people with early stage Alzheimer’s Disease.
The other couple was a married couple in their early fifties. The wife, age 52 had been diagnosed with early onset, early stage dementia and at this point she seems to have progressed to a moderate level. She had been an executive with a major television network and is currently on permanent disability. The couple have two daughters, age 13 and 11. They are aware of their mother’s diagnosis. The couple reported that she had initially been misdiagnosed as suffering from anxiety, but as her symptoms continued to worsen she went to a memory center for a complete work up and received the diagnosis of Alzheimer’s Disease. They said the biggest issue for them currently is the feeling that they are all alone and have lost many of their friends. The husband has been having a difficult time being the primary caregiver, care manager and working fulltime. He reported that he is taking an antidepressant. The girls see a therapist every other week and there currently is no support group available for them.
The biggest thing both couples stressed was the importance of early diagnosis and treatment. They both indicated that it is much better to be able to deal with the known rather than to be wondering what was wrong and that taking the medication early had slowed the progression and kept them much more functional than they would be if they had waited to start treatment.
At Distinctive Care we know the importance of early diagnosis and treatment which is why we have developed our Cognitive Screening Program. We offer this service at all three of our Bergen County offices and it helps Clients decide whether they should persue further testing, or if they are just experiencing mild age-related memory loss. Please call (201) 857-5283 to learn more about this program.
Alzheimer’s Association Annual Conference
May 6, 2009 at 9:09 am | Posted in Sophia Heftler, GCM | Leave a CommentTags: Alzheimer's Association, Alzheimer's Disease, Education
I will be attending my 6th annual Alzheimer’s Disease Conference on Friday, May 8, 2009 with 2 of my colleagues from Distinctive Care. The conference is called New Directions in Research and Care . I really enjoy attending this conference every year as I learn so much that I am able to put into practice to help my Clients and their families deal with this devastating illness.
While at this year’s conference I will be attending a panel discussion on Early Stage Alzheimer’s Disease and will be sure to share what I learn at this discussion with all my followers. Knowledge is power, and the more we can learn about Alzheimer’s Disease, the better we are able to serve our Clients. I will be sure that Bobbi and Megan will also let you know what they learn in their respective workshops.
Alzheimer Advocate
January 8, 2009 at 4:36 pm | Posted in Sophia Heftler, GCM | Leave a CommentTags: Advocacy, Alzheimer's Association, Alzheimer's Disease
A large percentage of Distinctive Care Geriatric Care Management’s Clients have been diagnosed with Alzheimer Disease. Working so closely with those who suffer the ravages of this cruel disease and the people who care for them have touched my life in so many ways, including teaching me to live in the moment which has helped me through many of the challenges life has provided for me.
With that in mind, when I received an email from the Alzheimer’s Association asking me to join their advocacy program I just had to join. There is not much to it, but it is ever so important!
Basically to be an advocate you agree to periodically receive action alerts which are calls to action asking you to contact your state or federal elected officials regarding crucial votes and decisions being made.
Today I contacted the president-elect to let him know how important funding for Alzheimer’s Disease research…all with just the click of my mouse! It couldn’t be easier.
As an advocate I will also be receiving information updates which will help keep me abreast of issues that are important to me as someone who touches the lives of so many with the disease. Information is power!
It’s so easy to become an Alzheimer Advocate. Just email advocate@alz.org. I hope you to will join as as we try to ensure that our elected officials don’t get left out of important votes. It only takes a minute to join and even less time to contact your elected officials.
For more information about dealing with the challenges involved in providing care for a loved one with Alzheimer’s Disease or other dementias please feel free to speak to a geriatric care manager at Distinctive Care. We will be happy to listen to your concerns and provide you with helpful information.
We can be reached in our Ridgewood office at 201-857-5283.
Regards-
Sophia
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