Alzheimer’s Caregiver Support Group Meeting

October 30, 2009 at 10:00 am | Posted in Barbara Siembieda, GC | Leave a Comment
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The November monthly meeting of the Alzheimer’s Caregiver Support Group is scheduled for Monday, November 2nd at 7 pm at the First Presbyterian Church in Ramsey, New Jersey.  Our topic will focus on the causes of dementia-related behaviors and how best to respond when we encounter them in our loved ones.   We hope to learn from eachother the strategies that work best in situations that each of us experience.  The Alzheimer’s Association has provided us with copies of a pamphlet on this topic which will be available to each group member to take home.  Our group is open to all and focuses on supporting  caregivers and the families of  loved ones with Alzheimer’s Disease and related dementias.  If you would like further information on our monthly support group, please contact Barbara at Distinctive Care Geriatric Care Management at 201-857-5283.

Speaker – “Defining Dementia” – Sept. 14th

August 19, 2009 at 12:08 pm | Posted in Barbara Siembieda, GC | Leave a Comment
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On Tuesday, September 14th at 7:00 pm. at the September meeting of our monthly Alzheimer’s Caregivers’ Support Group, Distinctive Care Geriatric Care Management will host Amy Elizabeth Matthews of the Alzheimer’s Association Greater New Jersey Chapter to speak on the topic of Defining Dementia. The aim of the program is to help gain a better understanding of Alzheimer’s disease and provide information about dementia and other related disorders.  Amy Matthews is the Associate Director of Late-Stage Dementia Care, Education & Outreach at the Alzheimer’s Association, Greater New Jersey Chapter. Amy has a long and distinguished career in the field of elder care and will discuss the ten warning signs of Alzheimer’s disease, the importance of receiving a thorough diagnostic evaluation, current treatment options, and support services available to caregivers.  The team at Distinctive Care Geriatric Care Management feels it is important to educate the public, especially those most at risk, about Alzheimer’s disease and other forms of dementia.   This event is being held in the Fellowship Hall of the First Presbyterian Church of Ramsey, 5 Shuart Lane, Ramsey, New Jersey and is open to the public. All are welcome to attend.   For further information, to register in advance, or if you have an interest in joining the monthly Alzheimer’s Caregivers’ Support Group, please call Barbara at 201-857-5283

Complementary and Alternative Therapies in Dementia Care

May 20, 2009 at 2:30 pm | Posted in Barbara Siembieda, GC | 1 Comment
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I attended a very informative session at the recent Alzheimer’s Association New Jersey Conference that explored the varied alternative and complementary therapies available to dementia patients. Research that deals with the easing the effects of dementia behaviors seems to show promising results in the search for new and more non-pharmacological care options for patients with dementia and Alzheimer’s disease. A person-centered care approach was presented in conjunction with a broad spectrum of therapies taken from cultures spanning the globe including: acupuncture/acupressure and Tai Chi (Chinese), ayurvedic (Indian), herb and food extracts, essential oils and aromatherapy, yoga, meditation and guided imagery, massage, light therapy and vitamin and dietary supplements, reflexology, energy fields medicine such as reiki and QiGong, dance and music therapy and, something new to me, Bach flower therapy. It was suggested that these therapies, when applicable to the patient’s level of care and ability and appropriate for incorporation into their care plan, produce a calming and comforting effect that can decrease restlessness and agitated behaviors. Though cost and availability determine the availability of such therapies, they do provide promising and exciting new horizons in the field of dementia and Alzheimer’s disease care.

End Stage Dementia and Tube feedings

May 13, 2009 at 9:30 am | Posted in Megan Milchman, GCM | Leave a Comment
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At this stage many people are confused as to what to do for their loved one, especially if there is no Living Will/Advanced Directive in place. End Stage Dementia can be difficult for the patient, family/caregiver, and anyone else who is involved in the care of this person.

By the End-Stage the person is completely dependent on others. They can no longer walk, talk, and eating may be difficult. What do you do at this point? Ask questions and become educated. Also go with what you feel, don’t allow anybody to choose for you, especially if it not something that you would do.

Get the facts. A nursing home will still allow your loved one to stay there, even if you decide not to go ahead and place a tube.

Get all your options and weigh them.

Facts: Peg tubes may not prevent lung infections. Peg Tubes are not required by law, it is YOUR choice. Tube feedings can be stopped at anytime. You are NOT starving your loved one. At end-stage Dementia, patients may not feel hungry or thirsty anymore and sometimes, feeding and hydrating them can cause more discomfort.

I am not telling you I am for or against tube feedings. I am also not telling you what you should do. I am giving you facts that you can use to help you along in your decision making process.

Good Luck!

Tube feeding myths and facts, Altenheim Nursing Home

Early Stage Alzheimer’s Disease

May 12, 2009 at 8:37 am | Posted in Sophia Heftler, GCM | Leave a Comment
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On Friday the staff of Distinctive Care Geriatric Care Management attended the NJ Alzheimer’s Association annual confernce New Directions in Research and Care.  The conference was amazing and there were internationally renowned presenters speaking about the new developments in the field of Alzheimer’s Disease research.

I had the privilege of attending a panel discussion featuring two couples in which one of the partners had early stage dementia.  It was fascinating to hear them describe what prompted them to be evaluated for the disease and what life has been like since receiving the diagnosis.

One couple was older and they did not live together.  The woman and the gentleman’s daughter had noticed changes in his memory, mood and behaviors.  They in turn had informed his son who lived out of town and it was during a visit to his son that he was told about the changes they all had observed.  Upon his return home he made an appointment to have a complete evaluation conducted and received the diagnosis of Alzheimer’s Disease.  He is currently living alone and his girlfriend worries about him being alone in the house.  He is still driving but knows that in the future he will have to give up the keys to his car.  His family and friends have been very supportive and the medication seems to have slowed the progress.  His brother also has the disease and they talk about it often.  He and his girlfriend attend a support group for people with early stage Alzheimer’s Disease.

The other couple was a married couple in their early fifties.  The wife, age 52 had been diagnosed with early onset, early stage dementia and at this point she seems to have progressed to a moderate level.  She had been an executive with a major television network and is currently on permanent disability.  The couple have two daughters, age 13 and 11.  They are aware of their mother’s diagnosis.  The couple reported that she had initially been misdiagnosed as suffering from anxiety, but as her symptoms continued to worsen she went to a memory center for a complete work up and received the diagnosis of Alzheimer’s Disease.  They said the biggest issue for them currently is the feeling that they are all alone and have lost many of their friends.  The husband has been having a difficult time being the primary caregiver, care manager and working fulltime.  He reported that he is taking an antidepressant.  The girls see a therapist every other week and there currently is no support group available for them.

The biggest thing both couples stressed was the importance of early diagnosis and treatment.  They both indicated that it is much better to be able to deal with the known rather than to be wondering what was wrong and that taking the medication early had slowed the progression and kept them much more functional than they would be if they had waited to start treatment.

At Distinctive Care we know the importance of early diagnosis and treatment which is why we have developed our Cognitive Screening Program.  We offer this service at all three of our Bergen County offices and it helps Clients decide whether they should persue further testing, or if they are just experiencing mild age-related memory loss.  Please call (201) 857-5283 to learn more about this program.

Alzheimer’s Association Annual Conference

May 6, 2009 at 9:09 am | Posted in Sophia Heftler, GCM | Leave a Comment
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I will be attending my 6th annual Alzheimer’s Disease Conference on Friday, May 8, 2009 with 2 of my colleagues from Distinctive Care.  The conference is called New Directions in Research and Care .  I really enjoy attending this conference every year as I learn so much that I am able to put into practice to help my Clients and their families deal with this devastating illness.

While at this year’s conference I will be attending a panel discussion on Early Stage Alzheimer’s Disease and will be sure to share what I learn at this discussion with all my followers.  Knowledge is power, and the more we can learn about Alzheimer’s Disease, the better we are able to serve our Clients.  I will be sure that Bobbi and Megan will also let you know what they learn in their respective workshops.

Alzheimer’s Caregiver’s Support Group in Bergen County

February 24, 2009 at 11:13 am | Posted in Barbara Siembieda, GC | Leave a Comment
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Distinctive Care Geriatric Care Management, along with the Alzheimer’s Association of New Jersey, will sponsor a meeting for caregivers on Monday, March 2nd. Our topic will be “Taking Care of Yourself While You’re Caring for Someone with Alzheimer’s.”

Balancing the demanding care of a loved one with memory loss while keeping yourself “balanced” is a daunting task. Trained facilitators will provide a forum to hear how other caregivers facing similar challenges are managing to do all the things that you are asked to do on a daily basis. We’ll talk about how to work your way through the maze of seemingly endless tasks and responsibilities while maintaining your mental, physical and spiritual health.

Please call me at 201- 857-5283 for further information. We would love to have you join us!

Alzheimer Advocate

January 8, 2009 at 4:36 pm | Posted in Sophia Heftler, GCM | Leave a Comment
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A large percentage of Distinctive Care Geriatric Care Management’s Clients have been diagnosed with Alzheimer Disease. Working so closely with those who suffer the ravages of this cruel disease and the people who care for them have touched my life in so many ways, including teaching me to live in the moment which has helped me through many of the challenges life has provided for me.

With that in mind, when I received an email from the Alzheimer’s Association asking me to join their advocacy program I just had to join. There is not much to it, but it is ever so important!

Basically to be an advocate you agree to periodically receive action alerts which are calls to action asking you to contact your state or federal elected officials regarding crucial votes and decisions being made.

Today I contacted the president-elect to let him know how important funding for Alzheimer’s Disease research…all with just the click of my mouse! It couldn’t be easier.

As an advocate I will also be receiving information updates which will help keep me abreast of issues that are important to me as someone who touches the lives of so many with the disease. Information is power!

It’s so easy to become an Alzheimer Advocate. Just email advocate@alz.org. I hope you to will join as as we try to ensure that our elected officials don’t get left out of important votes. It only takes a minute to join and even less time to contact your elected officials.

For more information about dealing with the challenges involved in providing care for a loved one with Alzheimer’s Disease or other dementias please feel free to speak to a geriatric care manager at Distinctive Care. We will be happy to listen to your concerns and provide you with helpful information.

We can be reached in our Ridgewood office at 201-857-5283.

Regards-

Sophia

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